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September 2019 Newsletter

Last month we featured John James and his recently published research article, "Informed consent, shared-decision making and a reasonable patient’s wishes based on a cross-sectional, national survey in the USA using a hypothetical scenario," published in the BMJ.  This month we want to show how this research can be applied in practical ways for advocacy and patient care.
 

You can also read more about John's advocacy work in this issue of our newsletter.

Summer is ending, but our advocacy work continues.

 

This issue we'd like to honor Jamee Cook, a wife and mom from Texas. She worked as a paramedic in the state of Texas for 11 years but now spends most of her time volunteering as a patient advocate.  Read more about her advocacy for women who received breast implants in the August newsletter. 

Here's a summary of our recent activities, a salute to a valiant patient safety activist, and more information on what we're doing to insure that medical treatments involving drugs or devices are safe, effective, and affordable.

This summer, we'd like to give a salute to a valiant patient safety activist, and more information on medical devices. The spotlight is on a Linda Radach, a true warrior in many areas, but particularly on medical device safety.

Spring 2018 Newsletter

Here's a summary of our spring events, a salute to a valiant patient safety activist, and more information on the Right to Try Act. The spotlight is on a warrior with Breast Implant-Associated Ana-Plastic Large Cell Lymphoma (BIA-ALCL) who turned to advocacy after realizing untold risks of her breast implants.

July 2017 Newsletter

Check out the latest updates on pending health legislation, FDA device regulation, and new CDC leadership. And don't miss USA Patient Network's new mission & vision statements! The spotlight is on one member's  experience advocating for thyroid patients.

June 2017 Newsletter

Get the real story about the Right to Try Act and read our comments to FDA about its most recent activity. The spotlight is on one inspiring USA Patient Network member who uses a unique approach to help patients share their stories and advocate for safer, more effective treatments.

April 2017 Newsletter

Learn how to participate in two of our exciting upcoming events. Read about FDA's long-overdue statement about the link between breast implants and a rare cancer.

March 2017 Newsletter

Read about our upcoming Foremothers Luncheon honoring Maureen Bunyan and Melanne Verveer. Also read more about the Right to Try Act and the effect it will have on patients. 

February 2017 Newsletter

Read about our upcoming Patient Advocacy Workshop in June and apply to serve on our Board of Directors. Also included is information on the latest FDA approvals and what patients and consumers should be mindful of. Be sure to read our Network Member Spotlight!

January 2017 Newsletter

Read about patient groups funded by pharmaceutical companies, as well as upcoming opportunities to write comments to the FDA on issues that matter to you. Be sure to read our Network Member Spotlight!

November 2016 Newsletter

Read about recent Patient Training Workshop, as well as upcoming opportunities to participate in FDA Advisory Committee Meetings for medical products and devices, 21st Century Cures Act, and NCHR's president Diana Zuckerman talk about biosimilars. Be sure to read our Network Member Spotlight!

September 2016 Newsletter

Read about patients taking a stand against the soaring price of EpiPen, as well as Patient Network members advocating for safer medical devices, Ariel Grace's Law, and the Medical Device Guardians Act. Be sure to read our Network Member Spotlight!

August 2016 Newsletter

Catch up on the recent advocacy of USA Patient Network members, including a lawsuit and a Consumers United for Evidence-based Healthcare annual meeting. Also check out info sheets about the FDA and Pre- and Post-market Studies.

June 2016 Newsletter

Read our recap of the June 2016 Advanced Patient Advocacy Workshop, catch up on relevant patient advocacy news, and read about one of our most active members.

Read about the achievements of some of our members and welcome new staff.

April 2016 Newsletter

Find out how you can be more effectively engaged with the FDA! Including information from a recent workshop at the FDA and information for applying for FDA patient representative positions. 

March 2016 Newsletter

Highlights of this issue include information about the new senate health bills and new FDA commissioner. 

February 2016 Newsletter

This is the first issue of our Patient Network Newsletter

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© 2016 by The National Center for Health Research. 

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