The USA Patient Network consists of patients, caregivers, and their friends and family members that are united by a common goal: to make sure that medical treatments are as safe and effective as possible.
The USA Patient Network consists of patients, caregivers, and their friends and family members that are united by a common goal: to make sure that medical treatments are as safe, effective, and as affordable as possible. Representing individuals from across the United States, we are educating ourselves and others about the treatment standards that are most important to us, including improving quality of life, and the symptoms and health outcomes that matter most to patients. A major aspect of our work is to provide patients’ perspectives to federal agencies and medical and public health researchers. Unlike most patient groups, the USA Patient Network does not accept funding from pharmaceutical or medical device companies, or insurance companies.
VISION: Ensuring that medical treatments involving drugs or devices are safe, effective, and affordable.
MISSION: An independent voice to strengthen the safety and effectiveness of pharmaceuticals and medical devices for patients through advocacy and education.
Patient Advocates Spotlights
Patient Network members wrote a letter to the House of Representatives Energy and Commerce Committee on February 26, 2018 asking them to make amendments to the Right to Try legislation to better protect patients. Read the letter here.
Patient Network members wrote a letter for senators asking them to oppose The Right to Try Act on February 24, 2017 because it strips away safety measures that protect patients. Read the letter here.
Patient Network members wrote a letter to senators asking them to delay and fix the 21st Century Cures Act. Read the letter here.
Patient Network members Kim Witczak, Veverly Edwards, Robyn Edwards, Yanling Yu and Jonathan Furman testified at an FDA meeting on unapproved usage of approved medical products on November 10, 2016. See photos here.
Patient Network Advocate Kim Witczak spoke during the public comment period during the FDA advisory board meeting regarding Chantix.
Interested in Joining?
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